mom told me about this blog that was in the newest CJD newsletter. i had not read it yet, but she was eager to share this with me. her name is lacy and she lost her dad to sporadic CJD in october of 2007. you can read all about her on her blog: http://www.runlacyrunforcjd.blogspot.com. she has the same ideas we all do for wanting to spread the word and raise money. after reading her blog i felt so connected to her, i emailed her. i am looking forward to learning more about her and her story, as i hope you all enjoy her blog as well.